We have had a very busy week this week. We had Joshua's 15 month well baby visit and he did great! He weighed in at 23lbs and the 45%. The best was he was up in height from the 10% group to 25% at 30in in only 3 months. Remember that Joshua was dx at 11 months with a BS of over 1200. We almost lost him and had no idea he was sick... It is a long story and I haven’t been able to write it fully yet. But they are concerned that the severe highs did growth damage and this is a good sign that maybe it won’t be as bad as they think. He got an all clear from the doctor except this pesky lump on his chest between his ribs and belly button. It has moved and gotten bigger as he has gotten bigger so she scheduled us to meet with the surgeon. We met with the surgeon and it is a epigastric hernia. This isn’t anything to major but it will need to be taken care of. The doctor said sometime in the next year but that he is more concerned with making sure Joshua is more stable with the diabetes. We also had our visit with the Endo. This is our 2nd visit. We saw her in April as a follow up and then she also wanted to see us now. We will meet with the nurse in September so I am excited and hopeful this means she thinks we are getting to be more knowledgeable. She still talks to us weekly after I send in our charts but I am excited at the idea of fewer appointments. At $20 a pop plus 20% of the visits this is a big help if we can meet less. So more good news Joshua’s A1C in April was 9.8- (keep in mind for anyone less than 6 they want it to be 8.5-7.5 for anyone under 2 they don’t have a model number but she wants to see it around 9). Anyway, so when she retook it this June (not the full 3 months apart) it was 9.6! She was thrilled about how well he is doing. She adjusted all his numbers again of course. So we are now on carbs/40 *4 and a lantus dose of 3. Since the change on Thursday we have only seen 1 300 or above and that was due to checking to soon!! WE ARE SO EXCITED!!
We also had to go to the doctor this week for a mysterious rash that has dried out his little skin really badly but with Aquaphor we are getting it back to normal.
So 4 dr. appts in one week has me wondering... can they daft my account every pay period and put me on the budget plan???
Hi Shannon,
ReplyDeleteI'm new to your blog and wanted to say hello! My name is Connie and I have two daughters who are 2 years and 4 years old. Both of my daughters were diagnosed with type 1 diabetes just 11 months apart.
Your story really moved me, my youngest daughter was diagnosed when she was 18 months old...caring for a baby with T1 is so difficult and I understand the struggles that come with it all too well. My oldest was 2 years old at the time of her dx.
I am looking forward to learning more about you and your family through your blog...and congratulations on your sons A1C :)
You are doing an amazing job! Winning all these a1c battles will help us win the war! Congrats! I'm sorry about his little hernia. I hope the precedure is quick and a complete success!
ReplyDeleteYay for Good NEWS!!!
ReplyDeleteHang in there my love... I know it is a very hard time...but you are doing a great job. I am glad you have a dx for that lil lump. Hopefully it won't be a big concern in the long run and all will be well.
Thank you for his update!
Great job on the A1c :) I know how hard it is to write out the story. I cried when I did it. But in the end... I felt better. I hope you are able to find a way to let it out.
ReplyDeleteHang n there :)
What a FANTASTIC update!!!!!! I'm so proud of your family!!!!!!!!! GREAT A1C :)
ReplyDeleteSo glad his A1C is great! Doesn't it feel good to know that all your hard work is paying off?! It's all worth it, isn't it?
ReplyDeleteI cannot believe is sugar at diagnosis was 1200. Oh. My. Word. That tells me one thing: God has a special plan for that little boy.