Thursday, June 24, 2010


Okay so we haven't had a sitter for Joshua yet. We did put him in day care at a church we took a financial class at because we were right upstairs the class was an hour and they have a beeper system. They didn’t even have to think about his diabetes. They just played and we did everything. At our church we have taken him with us instead of putting him in nursery time or I volunteered in the nursrey and missed church. I know we are being slightly over protective but this our truth. So my question is do you use a sitter? How did you find them? Do you pay more because of Diabetes? My endo said she would recommend the daughter of her nurse who has a type 1 sister. Would you allow a high school senior to sit for your 15 month T1? Do you think they have to have family who has had T1 or is that just an added bonus. What will you allow them to do? Or do you make sure you are home before shots are needed.
Bonus question- For your T1 boys what id gear have you chosen. They have cute girl ones but I cant find a boy one I like.

Saturday, June 19, 2010

Joshua's updates

We have had a very busy week this week. We had Joshua's 15 month well baby visit and he did great! He weighed in at 23lbs and the 45%. The best was he was up in height from the 10% group to 25% at 30in in only 3 months. Remember that Joshua was dx at 11 months with a BS of over 1200. We almost lost him and had no idea he was sick... It is a long story and I haven’t been able to write it fully yet. But they are concerned that the severe highs did growth damage and this is a good sign that maybe it won’t be as bad as they think. He got an all clear from the doctor except this pesky lump on his chest between his ribs and belly button. It has moved and gotten bigger as he has gotten bigger so she scheduled us to meet with the surgeon. We met with the surgeon and it is a epigastric hernia. This isn’t anything to major but it will need to be taken care of. The doctor said sometime in the next year but that he is more concerned with making sure Joshua is more stable with the diabetes. We also had our visit with the Endo. This is our 2nd visit. We saw her in April as a follow up and then she also wanted to see us now. We will meet with the nurse in September so I am excited and hopeful this means she thinks we are getting to be more knowledgeable. She still talks to us weekly after I send in our charts but I am excited at the idea of fewer appointments. At $20 a pop plus 20% of the visits this is a big help if we can meet less. So more good news Joshua’s A1C in April was 9.8- (keep in mind for anyone less than 6 they want it to be 8.5-7.5 for anyone under 2 they don’t have a model number but she wants to see it around 9). Anyway, so when she retook it this June (not the full 3 months apart) it was 9.6! She was thrilled about how well he is doing. She adjusted all his numbers again of course. So we are now on carbs/40 *4 and a lantus dose of 3. Since the change on Thursday we have only seen 1 300 or above and that was due to checking to soon!! WE ARE SO EXCITED!! 
We also had to go to the doctor this week for a mysterious rash that has dried out his little skin really badly but with Aquaphor we are getting it back to normal.
So 4 dr. appts in one week has me wondering... can they daft my account every pay period and put me on the budget plan???

Thursday, June 3, 2010

What Ive learned

Okay so here are some things I have learned... (in no particular order)

• No matter how hard I try, I can't predict yet what foods and activities will do to Joshua. - Try as I might 4 months later I still haven’t found any trends. He will go high or low following activities. Foods I have no idea what will do what for him. I try to keep things balanced but I am at loss on this still! The Dr. says it is normal and with him so young we don’t worry about this yet.
• Joshua's dr will ask me about the one log time I can’t visually remember and I will feel like a bad mom.- I swear she calls every week to check his numbers against the log I send in and we change his formulas based on these calls. I AM LUCKY she does this and not complaining but you can bet the one time she has a question about in the week is the one time I cant remember exactly what happen.
• Joshua will not eat what I want him to when I want him to. - If he is high and I do a low carb dinner he WONT eat it yet the night he is low and I do a high carb dinner he will turn up his nose to that and want the low carb options. remember he is only 15 months so of course it is not just D.
• We each have different children with different formulas. It amazes me when I see someone excited about bed time numbers of around 125. Joshua is to be between 100-200 *YEA RIGHT* but over night if he is under 150 we are to wake up and give carbs. If over 350 we give insulin. Again this has to do with him being so young but when we hit 75 in this house (which is great for some) it sends us in a tail spin.
• Just when I think that we can reduce how much we spend on co pays- the boys get sick and the 15 month check up hits and the endo visit hits... UGHHHHH Have I mentioned I HATE 80/20 plans!
• I cant just go on a play date with the boys anymore. I have to pack the entire kitchen sink with me so if I say no to a play date it is not about not wanting to hangout but more about not having the energy to plan out everything he will eat while we are away.
• I cant catch up on the D mom blogs and not cry no matter how hard I try. I cry about what I know you all are struggling with. I cry for what I learn is yet to come for me. I cry for the innocence our family has lost. I cry because I know for some families Diabetes would be a relief and I feel the great burden from it.
• I have learned that I will never stop being annoyed at the question "is this like forever or just a phase?" " Can't you just feed him correctly?"- Like I was feeding my 11 month old baby soda and candy for uhhh any meal??? Thank you for being concerned but really???
• I have learned that the term breast fed baby no longer carries the weight with me it did before. Jackson was healthy as a horse only going to well baby visits. Joshua he started off with reflux and it only went from there. Both were exclusively breast fed. Go figure!
• I have learned that a glass of wine or 2 will never taste as sweet again for the fear that I will sleep past the 3 am alarm.

Okay so maybe this is a little bit of a rant today, but it feels good! THANKS for listening